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Amri A011

Beautiful Amri was born on the 4th of June 2014... As any new parents, you never expect that something can be wrong with your new bundle of joy... She had club feet, what a shock, but according to the Dr's it was no biggy... So on her first day of life both feet were in casts. At age 3 months she underwent a tendonotomy (where they cut and release the tendon). This was the least of her troubles. At 4 months she had her first seizure... Her seizures have progressed from 1-2 a day, to about 30-120 a day, despite the numerous Doctors, Specialists, change in meds (12 different ones in total), diet changes, Neuro-physio training etc., she remains un-diagnosed. The meds given to her during one of her last Status Epilepticus episodes (lasting more than 6 hours), caused 4 heart failures, lung failure, renal and liver impairment. The seizures prevent her from having the childhood anyone deserves. Her joy and playfulness are consumed by it.

NON PROFIT COMPANY   |   REGISTRATION NO 2016/081818/08  |  NPO 174-438

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