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Stiaan S026

Mommy and daddy have never labeled me, but doctors have diagnosed me

with a chromosome disorder called 1p36 deletion. Of course I had to be extra

special, and have a 2p25 duplication as well (this is my DNA, which means it

affects all my organs and brain function). This is NOT all, I was also diagnosed

with Cerebral Palsy at the age of one.

 

I have severe epilepsy, asthma, visual and hearing impairment. Unfortunately, I also can't eat using my mouth and mommy needs to feed me via a feeding tube in my tummy. Due to my very weak immune system, I get sick very quickly and mommy has to keep me indoors most of the time, especially during winter.

 

MY MEDICAL EXPENSES ARE VERY HIGH!!

I require ABM Therapy to assist my body and brain to develop

I need to do oxygen therapy for brain development

I need therapy to assist with my hearing training.

I don't know the sound of a dog or the sound of an aeroplane.

 

Mommy and daddy would love to take me for Stem Cell Therapy to help with my brain damage, this can improve my motor skills a lot.

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